Sailing into Good Vibes: Celebrating 10 Years with Teenage Cancer Trust
The Teenage Cancer Trust unit, also known as ‘Area 61,’ hosted a 10th anniversary celebration for patients, families and hospital staff at Bristol Haematology and Oncology Centre (BHOC). The Crew were invite to attend a sing a few songs!
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Theme song provided by Kale A. Deane
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Transcript
I'm hoping the cabin boy you'll listen to Strip trout in Bristol Fashion Sheer.
Speaker B:Shape and bristle Fashion boys along the hardware side From Evil Gorge to Wonderful he'd haul the line, secure the barrels down below Bite the tie and chum.
Speaker A:This vessel she is certified Shipshape and.
Speaker B:Bristol Fashion.
Speaker C:Ahoy there, shipmates, and welcome to Shipshape and Bristol Fashion, where Welcome to Episode seven and I'm really pleased that you've joined us.
Speaker C:This episode is going to be covering a very special event where the crew was invited to come along and celebrate the 10th anniversary of the Teenage Cancer Trust's unit in Bristol in the Oncology Center, a unit dedicated to young people that are living with cancer and receiving incredible treatment.
Speaker C:And the unit is a space that is supported by the Teenage Cancer Trust to ensure that they feel home from home.
Speaker C:And the crew was so honored to come along and sing for them, knowing that we had raised so much money to enable this project and many others across the United Kingdom to function.
Speaker C:If this is the first time that you've discovered our podcast, then welcome.
Speaker C:This, of course, is episode seven.
Speaker C:There are plenty of other episodes to listen to, so please do however you found this episode, look back on our previous episodes, either on our website or on any good podcasting platform.
Speaker C:You certainly will find a plethora of material from interviews with the crew and of course, some songs to join in and sing along with.
Speaker C:As we are now in the depths of a British summer, which we can probably tell by the amount of rain that keeps pouring, I hope you guys are finding some time off to enjoy some annual leave or some time with your family.
Speaker C:The crew are very busy, as you can probably imagine.
Speaker C:And then when we come back in September, we'll have some highlights of what's been going on during the summer months.
Speaker C:But like I said, this episode is a special episode to really highlight the amazing work of the Teenage Cancer Trust.
Speaker C:And we would really love you to just listen all the way through to the songs, of course, but there's some incredible speeches that really allow you to appreciate the work that the Teenage Cancer Trust applies to caring for and supporting the treatment for teenagers.
Speaker C:It is absolutely incredible that every day that seven young people age between 30 and 24 hear those awful words that you have cancer.
Speaker C:And they all need specialized nursing care to support them through the whole treatment process.
Speaker C:In the United Kingdom, the Teenage Cancer Trust is the only UK charity dedicated to meeting this vital need.
Speaker C:So no young person faces cancer alone.
Speaker C:And we know that the Teenage Cancer Trust massively welcomes what we do within the Port of Bristol Shanty Crew, we, of course, within the crew, have connections with people that are living with and receiving treatment for varying different levels of cancer.
Speaker C:But it's important to recognize that what we do is, of course, having fun and gathering and really highlighting the world of shanti.
Speaker C:But really the serious bit is to.
Speaker C:Is to make some money.
Speaker C:And what I'd like you to do now, as you're listening to this and as you listen to the rest of this podcast, is to think about, are you in a position to donate some money?
Speaker C:This is really a kind of a call to action, if you would be so kind to do so.
Speaker C:And it doesn't matter how much or how little you give, but we would really love you to pop over to our website and then there's a little link that says, donate now or donate here.
Speaker C:In fact, that allows you to go to our just Giving website that shows you a lovely link that you can click on and donate.
Speaker C:Now, we know that we are looking very healthy.
Speaker C:We've got £30,273 at the time of recording, but we are now aiming for 40,000.
Speaker C:And we would really love you to just consider, as you listen to this podcast, some of the amazing work that is really clearly welcomed by everyone involved.
Speaker C:And if you could possibly donate as much or as little as you possibly can, we would welcome that.
Speaker C:So all you need to do is pop over to our website.
Speaker C:It is in the show notes and I will of course share this website with this episode.
Speaker C:But if you're listening to it now, grab a pen and paper and you're looking to go over to pobshantycrew.co.uk so whatever search engine, whatever web browser you use, type that in and you will then pop over to our website and you'll see, like I said, a button to donate.
Speaker C:So let's listen to the audio from this very special event.
Speaker C:So we are here at the teenage cancer trust 10th anniversary celebration.
Speaker C:I've managed to catch up with some of the crew chaps.
Speaker C:How you doing?
Speaker C:Got art, we've got nobbies.
Speaker B:Yeah, well, it's great to have art back with us.
Speaker B:Yes.
Speaker C:You've had a bit of a time off, haven't you, buddy?
Speaker B:We've been up to Scotland.
Speaker B:We've been up to Scotland.
Speaker C:Jimmy.
Speaker B:I asked him if he could find a grower up there, but they don't.
Speaker B:They don't do them.
Speaker B:North of Yorkshire had a brilliant time.
Speaker B:Absolutely super.
Speaker B:The weather was great.
Speaker B:There were no midges, there were no cl.
Speaker B:Lots of friendly people, lots of wonderful food, and best of all, lots of wonderful distilleries.
Speaker B:Oh, very nice.
Speaker C:And that's good for the pain, isn't it, I hear.
Speaker C:Oh, absolutely.
Speaker B:Pain of the knee.
Speaker B:It took it away completely.
Speaker C:Oh, my goodness.
Speaker C:Well, that's good.
Speaker C:So, chaps, you must be so proud that, you know, we as a crew have managed to raise £30,000 for this amazing charity.
Speaker B:Yeah.
Speaker C:And this is a good time to reflect on that, isn't it?
Speaker B:Really phenomenal.
Speaker B:Absolutely phenomenal.
Speaker B:As you say at the beginning, £1,000 was a.
Speaker B:A fast stretch for us to make.
Speaker C:Now, after two years, having made over.
Speaker B:£30,000 and still looking upwards.
Speaker C:Yes, to the future.
Speaker B:To £40,000 in our next target, which we hope to attain in the not too distant future.
Speaker B:We look forward to presenting that money to the teenage County Trust again, which is great.
Speaker C:It's going to be good.
Speaker C:It's going to be.
Speaker C:And of course we, the charity will make use of that money.
Speaker C:So if we keep fundraising, they'll keep spending and most importantly, the.
Speaker C:The youngsters will really benefit from it.
Speaker B:Yeah, we'll keep going and going and going until, I don't know, we reach 100 grand, maybe.
Speaker C:I don't know.
Speaker C:Hey, we'll just keep on going, eh?
Speaker B:Yeah, just keep on going.
Speaker B:Keep singing.
Speaker B:So all the voices keep intact.
Speaker C:That's it, isn't it?
Speaker C:Yeah, definitely.
Speaker C:Definitely.
Speaker B:Lost her throat after the weekend.
Speaker C:Yeah, he shot right after Palmer, so.
Speaker B:No at all, did he?
Speaker C:He couldn't at all.
Speaker C:He couldn' at all.
Speaker C:Well, Ch, let's go and have some coffee and cake because there's a big celebration going on here right now and I'll go and catch up with some more people.
Speaker B:Okay, I'll catch up.
Speaker B:Just in, everybody, we're ready to sing.
Speaker B:Pardon?
Speaker B:Up.
Speaker B:Right, if I could just introduce ourselves.
Speaker B:We are.
Speaker B:We are the Port of Bristol Shanty Crew.
Speaker B:Calls for applause as usual.
Speaker B:Not as possibly.
Speaker B:Our motto is the Port of Bristol Shanty Crew.
Speaker B:The triumph of enthusiasm over talent every time.
Speaker C:Very enthusiastic.
Speaker B:And we have been supporting the Teenage Council Trust even since we started, which was barely two years ago.
Speaker B:And we aim to raise £1,000 and we've now raised £30,000.
Speaker B:People usually pay to stop singing, you know.
Speaker B:For goodness sake, stop.
Speaker B:I'll give you a tenor.
Speaker B:More than that.
Speaker B:Anyway, we're going to sing a couple of songs.
Speaker B:Yeah?
Speaker B:Tracy?
Speaker D:Yeah?
Speaker A:Do you want to sing two songs of one song?
Speaker B:Go for two.
Speaker B:Okay.
Speaker B:Right, I'm going to introduce you to my friend here, Demeanor.
Speaker D:Here he is.
Speaker B:He's.
Speaker C:Come here.
Speaker B:This is Nobby.
Speaker B:Nobby Die.
Speaker B:And although he formed the group two years ago, me and Nobby are great friends for over nearly 40 years now.
Speaker B:Yeah.
Speaker B:Back at the battle of Jafar, we met.
Speaker B:I remember it well.
Speaker B:It was a lovely day, wasn't it?
Speaker B:Yeah.
Speaker B:Anyway, Nobby is.
Speaker B:We've been singing Shanta.
Speaker B:He's been singing it.
Speaker B:Singing them for longer.
Speaker B:And in that time, nearly 40 years, he hasn't actually learned all the words yet.
Speaker B:Ah, okay.
Speaker B:Except for this one, actually.
Speaker B:Yeah.
Speaker B:South Australia.
Speaker B:In South Australia I was born.
Speaker B:Evil way, all the way.
Speaker B:South Australia and Cape Horn we're bound to South Australia all the way you rolling king.
Speaker B:Evil way all the way all the way you'll hear me sing we're bound to South Australia As I look at one morning fair.
Speaker B:Evil way all away There I met Miss Nancy Blair.
Speaker B:We're bound for South Australia all the way you rolling kings.
Speaker B:Evil way all the way all the way you'll hear me sing we're bound to South Australia.
Speaker B:And as we walk around the town.
Speaker B:Evil way all the way we danced around and around and round we're back for South Australia all the way Rolling kings heave away all the way, all the way away Hear me sing.
Speaker B:We're bound for South Australia.
Speaker B:And as we walk down on the strand Evil way all the way.
Speaker B:Bottle of whiskey in me and we're bound for South Australia all the way you rolling pings.
Speaker B:Eagle way.
Speaker B:Haul away, haul away, you'll hear me sing.
Speaker B:We're bound for South.
Speaker B:And as we walloped round Cape Horn Heave away all the way.
Speaker B:Wasted God you'd never been born.
Speaker B:We're bound for South Australia all the way you rolling kings.
Speaker B:Eagle way all the way all the way you'll hear me sing where I go.
Speaker B:South Australia right over to you.
Speaker B:Oh, another one, another one.
Speaker B:Okay.
Speaker B:Still watching the speeches.
Speaker A:Right.
Speaker B:Another song.
Speaker B:It's called Captain Nipper or good grabby muffin.
Speaker B:14 September.
Speaker B:Oh, well, I do remember.
Speaker B:I nearly broke me poor old mother's heart.
Speaker B:Pour my ship with Captain Nipper on a big foremasted clipper and bore way down south to foreign parts.
Speaker B:And the wind began to blow and ship began to roll.
Speaker B:And the devil of hurricane did blow high O.
Speaker B:And it nearly knocked the stuffing from the good chip.
Speaker B:Rack a muffin.
Speaker B:We thought to the bottom we would go.
Speaker B:So we hoisted up the anchor and we set the jib and spanker and the pilot took us to the harbour's mouth and then from the tug we parted and on the bow we started with a compass breathing east nor west by south and the wind began to blow and ship began to rol and the devil of a hurricane he blow high O and it nearly knocked the stuffing from the good ship Ragamu muffin we thought to the bottom we would go they do do that after every flag.
Speaker B:Then came a good stiff breeze which made the old man sn I got no idea what that is.
Speaker B:Right.
Speaker B:But if your full top gun at jib boom gets thrown away, it's pretty bloody serious.
Speaker B:And for seven days we bore it by running right before it thinking we was on our way to do and the wind began to blow and the ship began to roll and the devil of a hurricane did blow I O and in kneeling up the stuffing from the good chip ragamuffin we got to the bottom we would go Then the captain came on deck Then the captain came on deck and he said oh, blooming in and made every man put on his oilskin coat for we have come to a decision as we have plenty of provisions he said we'll make our record passage out and the wind began to blow and the ship began to roll and a devil of a hurricane did blow I O and it nearly knocked the stuffing from the good ship rag of muffin we thought to the bottom we would go but the ship was quarterback and the stage began to crack and our lower foretop ganzel was carried away so we put the helm right over and headed back to Dover and anchored safe and sand inside the bay and the wind began to blow and the ship began to roll and the devil of a hurricane did blow high o and it near not the stuffing from the ship Ragam muffin we draw to the bottom.
Speaker B:We would go.
Speaker D:In advance for reading, but I've been on call all weekend and I'm still on call now, so.
Speaker D:Good afternoon everybody and welcome to the TYA unit's 10th birthday.
Speaker D:I'm Rachel Dummett, I'm lead clinician for our service and I can't quite believe we're 10 years down the line.
Speaker D:I was on maternity leave when the unit opened, so I missed the grand opening, I missed Sarah and I became involved when I returned and they haven't.
Speaker A:Been able to get rid of me since, really.
Speaker D:The TYA Unit has firmly put and developmentally appropriate care for cancer patients on the agenda in both Bristol Haematology and Oncology Centre, in University Hospitals Bristol and Western Trust as a whole, but also as the principal treatment centre for the South West.
Speaker D:Some of our patients and their families are a long way from home when they're here and travelling significant distances to access their care.
Speaker D:We work alongside our TYA teams across the Southwest to ensure our patients can access the highest quality and safe care that they need.
Speaker D:And this requires a lot of unseen work and coordination behind the scenes.
Speaker D:But back to the unit.
Speaker D:Like all things TYA, the last 10.
Speaker A:Years have been a real roller coaster.
Speaker D:But we have definitely evolved and matured over that time.
Speaker D:As a unit and a wider service, we've been subject to a number of challenges, not least a global pandemic, which meant we lost our unit altogether and we reclaimed it, and hopefully it's bigger and better than it was before.
Speaker D:But we've also seen changing age thresholds for location of care, which have added new challenges for us which we faced head on.
Speaker A:We're very proud and protective of our.
Speaker D:Unit and as a team, we frequently get into trouble because we're advocating for.
Speaker A:Our patients to access the unit.
Speaker D:And as professionals who work with TYA patients, we want to make the system think differently.
Speaker A:And we are a determined bunch.
Speaker D:We always want more for our patients, more beds, more staff, more clinical trials.
Speaker D:And I look forward to the next 10 years as we continue to chip away and strive for greater things for the young people of the south west of England that we're here to support.
Speaker D:I want to thank everyone who helps us to make this possible, both within the NHS and beyond, and for the ongoing support that we receive from the Teenage Cancer Trust, without whom we would not be here today.
Speaker D:So thank you all very much for coming and enjoy the birthday celebrations.
Speaker D:And I'll hand over to Kate.
Speaker A:I'll stand next to you because I'm aware there's a.
Speaker A:It's amazing how much the distance you can create around yourself.
Speaker A:We'll either start singing or start speaking and we've got a huge amount.
Speaker A:Please do feel we feel very welcome.
Speaker A:Do come in.
Speaker A:One, two people in your corridor out there.
Speaker A:Don't worry, you don't have to make a speech.
Speaker A:It doesn't go round.
Speaker A:So I'm Case and I am the Chief Executive of Teenager Council Trust.
Speaker A:It is a job I'm incredibly fortunate.
Speaker A:To have a job that you love is a real blessing in life.
Speaker A:I've been Chief Exec for six years, but I've been part of Teenage cancer trust for 15 years.
Speaker A:That's hard to believe.
Speaker A: Cancer Trust when I joined in: Speaker A:And I can remember the appeal starting to raise funds for this unit, and I can remember everything along the way.
Speaker A:And it is my absolute privilege to be here with you celebrating a remarkable landmark.
Speaker A:I cannot quite believe that it's 10 years since the unit overwhelmed and there are so many things to say thank you for.
Speaker A:There are so many things to celebrate and so many people to remember.
Speaker A:And just a few of us are here today to do that.
Speaker A:So to make it easy, I think there are three main things to say thank you for, to celebrate and to remember.
Speaker A:First, let's say a thank you and celebrate everybody who was involved before there was this remarkable unit here, everyone who led and launched the appeal that made it happen, the young people themselves who were involved, who were tireless in making sure that their voices were heard and that their needs would be met through this new unit.
Speaker A:And the clinicians and nurses who themselves were tireless, determined in their drive to make sure young people with cancer and their families didn't face it alone.
Speaker A:Because there was a service a long time before there was a unit here in the south west, but during.
Speaker A:Let's celebrate.
Speaker A:Second, let's celebrate that decade of drive, determination and commitment, the expert care and the innovation across the Southwest that has followed with the outreach work happening across the Southwest.
Speaker A:And third, let's say thank you and celebrate everything that's happening right now in this incredibly powerful, effective and very important service for young people with cancer and their families.
Speaker A:And let's be a little bit cheeky and say thank you in advance for everything that is yet to come, because there is so much more to strive for.
Speaker A:This is not job done.
Speaker A:This is not 10 years cake.
Speaker A:Great tick.
Speaker A:There is so much more to do for young people with cancer and we're as determined and driven as everyone here to make sure that that happens.
Speaker A:So I want to thank everyone who makes the work of this TYA service so special and everyone who makes it happen.
Speaker A:I want to thank all of the fundraisers and supporters that 30,000 pounds is remarkably needed and so appreciated.
Speaker A:Every penny that you give to Teenage Cancer Trust helps make our work possible because we rely on donations to make it happen.
Speaker A:And thank you to everyone who's done so much and will continue to do so much for young people with cancer, not just across the Southwest, but across the uk.
Speaker A:So I'm actually going to finish with a small quote which I really, really love and I think really sums up the power of what happens here.
Speaker A:And it's from someone called Margaret Mead, who is an anthropologist, which means they're much smarter than me, basically.
Speaker A:And Margaret Mead said, never doubt that a small group of thoughtful, committed people can change the world.
Speaker A:Indeed.
Speaker A:It's the only thing that ever has.
Speaker A:And everything that happens here is really about making change happen, making change happen for the better.
Speaker A:And it is massively appreciated.
Speaker A:So thank you very much and thank you for not making me sing, because nobody.
Speaker A:Thank you very much.
Speaker B:The crew don't either.
Speaker B:I'll stand here because he's delighted to see everyone.
Speaker B:I was talking with Doc this morning, John Hayes, who is one of the crew and can't be here because he's working, he's a gp, as you know.
Speaker B:And I put together something and I.
Speaker B:I said I'd like to do this for the crew.
Speaker B:To the Tinish Castle Trust for the two years that they've been working to raise funds for you.
Speaker B:It's just a simple little presentation.
Speaker B:I'll show the crew, first of all.
Speaker B:So on behalf of the teenagers, on behalf of the teenager, on behalf of the Port of Bristol Shanty Crew, I would like to present you with this little framed certificate.
Speaker A:Amazing.
Speaker D:Thanks.
Speaker B:Aoy, me shipmates.
Speaker B:You're listening to Ship Shape and Bristol Fashion.
Speaker C:CH&REV.
Speaker C:How are you?
Speaker B:Both of us are here.
Speaker B:Yeah, we're having a great time, actually.
Speaker B:Thanks, Justin.
Speaker C:We've done a couple of songs so far.
Speaker C:They seem to be very receptive.
Speaker B:Yeah, yeah.
Speaker B:We locked the doors.
Speaker C:Yeah, yeah.
Speaker B:They can't go away.
Speaker C:It's the best.
Speaker B:They all tried to get as far away as possible.
Speaker B:Did you notice that?
Speaker C:Yes, I did see the line in the F.
Speaker C:And you were chasing them and you were chasing.
Speaker B:I was getting closer and closer.
Speaker C:We didn't know if we should follow you.
Speaker B:I know.
Speaker C:Well, isn't it amazing that we can celebrate with them on their 10th anniversary?
Speaker C:But of course, on our celebration that we've managed to raise over £30,000.
Speaker B:It's amazing, isn't it?
Speaker B:It's really good.
Speaker B:Yeah.
Speaker B:To come down here to see the sort of thing that our money help with.
Speaker C:Yeah.
Speaker B:A special unit for all young people in the southwest of England who are sadly battling cancer.
Speaker B:I know it's horrible, but the atmosphere of the place, you'd imagine it would be downbeat, but it's not.
Speaker B:No, there's a real sort of upbeat, positive spirit here.
Speaker C:Yeah, there is.
Speaker B:The adults that are working here are absolutely fantastic.
Speaker B:So, yeah, it makes it all worthwhile.
Speaker C:Good.
Speaker C:Now, Chuff, have you got any songs that you're going to sing?
Speaker C:After the red cake, have you got any solos you're going for?
Speaker B:I think the Rev is still deciding what the set list is going to be, so there may be one.
Speaker C:Watch this face.
Speaker B:Yeah, it depends on how the audience are, should we say, interacting with us.
Speaker B:Yes, yes.
Speaker B:Have to be mindful of it.
Speaker B:Perhaps a few sea shanty songs being working songs might not be appropriate.
Speaker C:Yeah.
Speaker C:I have to say that Nobby did very well at reconstructing us on there earlier.
Speaker C:That was.
Speaker C:That was good.
Speaker B:Yes.
Speaker C:That explains the repetition of a couple.
Speaker B:Of words which were unexpected, expected for us.
Speaker C:Yeah.
Speaker B:But obviously we're moving on one of the.
Speaker B:The words which perhaps would have been.
Speaker C:Better in the pub.
Speaker B:We're on board.
Speaker C:Yes.
Speaker B:Mind you, we're quite used to having unexpected words in novice songs, aren't we?
Speaker B:So it wasn't too much of a surprise.
Speaker C:He's written so many.
Speaker C:You can't remember them all, though, apparently.
Speaker C:Bless him, bless him we gotta love him.
Speaker C:Well, there's tea and there's coffee and there's cake, so let's go and enjoy that, shall we?
Speaker B:I mean, we should.
Speaker C:I thought I better speak to the important people, that of the Teenage Cancer Trust and I'm sitting down with a young lady.
Speaker C:Do you want to introduce yourself?
Speaker D:So, thank you very much for having me.
Speaker D:I'm Tracey Burns and I'm the senior Relationship Manager for the Southwest for Teenage Cats Trust.
Speaker D:So in basic terms, I'm the fundraiser and I look after all of our fantastic supporters across the southwest.
Speaker C:Well, fundraising is so important for the charity, isn't it?
Speaker C:It makes things happen, it enhances the care of the children that come through the teenage units.
Speaker A:What are.
Speaker C:What a journey the Port of Bristol Shanty Crew have had so far.
Speaker D:Huge, huge.
Speaker D:So I first got introduced to the Port of Bristol Shanty Crew about two years ago.
Speaker D:They, A young lad called Harry, they want to do a bit of fundraising to support him.
Speaker D:So they came to us and said they were going to raise a thousand pounds and they were going to do a few gigs and I was like, brilliant, Tell me all about it.
Speaker D:Sing song.
Speaker B:Love it.
Speaker D:So we started off two years ago, like I said, and it jacked, just went from one extreme to the other.
Speaker D:They came to Bristol Balloon Fiesta and they stand sang on the bandstand for us.
Speaker D:They are coming to Valley Fest with us in August.
Speaker D:But, yeah, it's just gone from one extreme to the other with them and every time the total of the target goes up and up and up and we cannot thank them enough.
Speaker D:They've been an absolute dream to work with.
Speaker C:And at this point in recording, I think we've raised just over £30,000.
Speaker C:This is an episode that's gone out in August, so I'm hoping there'll be a bit more in there.
Speaker C:Again, what kind of things does that money get put towards?
Speaker C:You know, there's obviously many different aspects of cancer treatment, but.
Speaker D:So it costs 30 pounds an hour to fund one of our specialist nurses.
Speaker D:So the money that the shanty crew have raised can go from anything to paying for hourly for the nurses.
Speaker D:It can go to paying for YSCs, which are youth Support Coordinators.
Speaker D:We have one here on the Bristol unit and they work with young people and they do workshops, really encouraged the young people to come out themselves and socialise and just be normal, because cancer turns their world upside down.
Speaker D:And the YSCs and the nurses try to do young person first, cancer second.
Speaker C:And I'm sitting in what is an incredible unit, the Teenage Cancer Trust clearly support this unit within, uh, Bristol and Weston's campus here.
Speaker C:And we know that cancer isn't new, it's been around for a long time.
Speaker C:And I know the teachers, teenagers before, had to kind of make do with what could be provided.
Speaker C:But right now I'm sitting in an incredible place.
Speaker C:Tell us about this place.
Speaker D:So this is in the.
Speaker D:In the Oncology and Haematology Centre in Bristol.
Speaker D:It's on the sixth floor and it's called Area 61.
Speaker D:It's a unit of five private bathroom units.
Speaker D:So young people have their own space.
Speaker D:It's got a chat room.
Speaker D:We're sat in the gaming room at the moment.
Speaker D:So it's got the gaming room next door where you can probably hear all the noise.
Speaker D:Yes, a lot of noise is where.
Speaker D:It's kind of like the social space.
Speaker C:Yeah.
Speaker D:And what's really important, this seems like a kitchen.
Speaker D:So all our units have a kitchen.
Speaker C:Okay.
Speaker D:Something that sounds pretty simple, but if you were on a ward, you wouldn't have a kitchen.
Speaker D:But this helps young people just be them, be themselves.
Speaker D:They can eat what they want when they want.
Speaker C:Yeah.
Speaker D:The units are 24, 7.
Speaker C:Okay.
Speaker D:So if a young person wanted a friend to come in for pizza at 10 o' clock at night, that's fine.
Speaker D:So it's all about being a teenager.
Speaker C:First and making it as normal as possible, isn't it?
Speaker D:Trying to make it as normal as possible for the young person, but also their families.
Speaker C:So good.
Speaker C:I mean, it's like a teenage heaven.
Speaker C:There's Xboxes, there's exercise machines, you know, the Big social part.
Speaker C:It's just open.
Speaker C:It's a big space.
Speaker C:It's lovely.
Speaker C:I'd love to come here and visit people.
Speaker C:It's so lovely.
Speaker D:So there's a pool table, there's table football, there's jukeboxes.
Speaker D:So, yeah, it's absolutely a wonderful space for young people.
Speaker D:And our unit, like this unit, is 10 years old.
Speaker D:We've got 28 units across the UK.
Speaker D: The first unit was open in: Speaker D:The first unit was open and these just create an environment really, just for the young people to be.
Speaker D:To be themselves.
Speaker D:But prior to the units actually being built.
Speaker D:Yeah, a young person depending on their age.
Speaker D:So obviously we're 13 to 24 year olds.
Speaker C:Okay.
Speaker D:So under 16s would be treated in a child.
Speaker D:Children's world.
Speaker C:Yeah.
Speaker D:And over.
Speaker D:Over 16s, we're generally treated in adulthood.
Speaker C:Okay.
Speaker C:So imagine being polar z, polar opposites.
Speaker D:16, 17 year old, and you are on adult ward and you're next to Bob with his stripy pajamas on, in.
Speaker C:His 80s, dealing with his own cancer.
Speaker D:Yeah.
Speaker D:Not much fun.
Speaker D:Or it can go the other way where you'd be a 14 year old, scared young person and being treated in the children's ward with six year olds.
Speaker C:Yes.
Speaker C:And all the noise that comes with that.
Speaker D:So it's a real specialized age and that's what we do, we help them through it.
Speaker C:And people travel from all over the region to come here, don't they?
Speaker D:They do, they do.
Speaker C:It's not just Bristol people, is it?
Speaker D:No.
Speaker D:So in the southwest, we're really lucky.
Speaker D:We've got the unit here in Bristol and then we've got outreach nurses across designated hospitals.
Speaker D:So we reach as far down as Cornwall.
Speaker D:We've got nurses in Plymouth and Exeter and Taunton and Gloucester.
Speaker D:So we've got quite a network of specialised nurses that will, you know, do the Teenage Cancer Trust way and help young people through their treatment if they're being treat.
Speaker D:Yeah.
Speaker D:From home, from a designated hospital or we've got like today we've got young people here from Cornwall who are staying on the ward.
Speaker C:And that's also equally as lovely, isn't it?
Speaker C:We've talked about how we're in a space that feels like home and they've got independence, which is so important to these young people, but literally a stone's throw away.
Speaker C:You're in an incredibly clinical environment where they can really get kind of advanced cancer treatment.
Speaker D:They can, they can.
Speaker D:You know, Bristol Hospital, BRI of the Oncology and Hermetology center, is an absolutely amazing center and for Us to have this space fully funded by Teenage Cancer Trust.
Speaker D:To have this space is just absolutely incredible.
Speaker D:And you know, to come walk in every time I walk in adds peace to my heart.
Speaker B:Yeah.
Speaker C:Must be so proud being a fundamentalist.
Speaker C:Worth standing with those buckets in the rain and shine.
Speaker C:To know that the money's been spent on fantastic facilities like this.
Speaker D:And just speaking to the families, you know, you've used the unit and.
Speaker D:And speaking to them and you know, like yourselves, we've had many families be supporters and.
Speaker D:And fundraise for us and raise thousands.
Speaker C:Yeah, so good.
Speaker D:But, yeah, absolutely brilliant.
Speaker D:And it's such a beautiful space for young people.
Speaker C:Well, thank you for everything you do.
Speaker C:We're longing, we're hoping to continue our relationship and raise even more money to.
Speaker C:To build into this world.
Speaker C:And I think we need to go out and about and just see what everyone else is doing in the.
Speaker C:In the social side because it's very loud that there in a minute, isn't it?
Speaker D:Thank you very much for having me.
Speaker C:Thank you.
Speaker B:In fact, we have a request.
Speaker B:We're going to keep singing anyway.
Speaker B:And we're going to start off with my mate Ash.
Speaker B:Even though he's a football referee, we still like him.
Speaker B:We do like him.
Speaker B:Oh, yeah, sorry, this song is full.
Speaker B:This song.
Speaker B:Don't worry, we'll sing.
Speaker B:Okay, we'll sing.
Speaker C:Just carry on.
Speaker B:Carry on.
Speaker B:I thought I heard the old man say John Kanakanaka July 8 Today Today's a holiday John can act and act a July a July a O2L John Kanaka Nakatoo I A We're at wood band at break of day John Kanaka Nakatoo I A We're at wood bound for Frisco bay John Kanaka lack a 2L a 2L a o 2 liay John Kanaka nakatulay Where I would band around Cape Horn John Kanaka naka Tulaya you wish to God you'd never been born John Kanaka Naka 2 Liay 2 Lia O2 liar John Kanaka Nakatulay We're a Bristol ship and a Bristol blue Blue John Kadakadakatula Yay.
Speaker B:They're sitting where gas said blue When I get to Frisco Bay Junkanakanaka 2 lie will bail off ship and draw her pay John Kanaka ac Just one more verse and then we're through.
Speaker B:Okay?
Speaker B:One more, one more.
Speaker B:And you got to listen carefully.
Speaker B:Now you can put the go.
Speaker B:It's a chorus.
Speaker B:You can join in.
Speaker B:All right.
Speaker B:With action and singing.
Speaker B:So What I'd like you to do, if it's possible, you can clench your fist.
Speaker B:Left, right fist.
Speaker B:Put your right fist or the other right.
Speaker B:It's up to you.
Speaker B:And the chorus goes like this.
Speaker B:It's all parts of being a pirate.
Speaker B:A pirate, a pirate.
Speaker B:Not very good are.
Speaker B:Then let's just practice that shot.
Speaker B:It's all well done.
Speaker B:Now, this is going to be sewn by Chuffer Hat.
Speaker B:See?
Speaker B:This is pirate hat.
Speaker B:Now, Chuffer tends to do that at the wrong time.
Speaker B:Or the right time for him.
Speaker B:At the wrong time for you.
Speaker B:So look at the rest of us.
Speaker B:Off you go, Chuff.
Speaker B:All worked out.
Speaker B:All of it.
Speaker B:Yeah.
Speaker B:Oh, yeah.
Speaker B:Oh.
Speaker B:Being a pirate is all fun and games.
Speaker B:Until somebody loses an arm.
Speaker B:Makes you cool faces cry.
Speaker B:Black patch will cover that patch.
Speaker B:And make sure that socket stays dry.
Speaker B:Be it a pirate Is all fun in games.
Speaker B:Till somebody loses an arm.
Speaker B:Here we go.
Speaker B:It's all part of being a pirate.
Speaker B:A pirate.
Speaker B:Pirate shall be a pirate with all of your parts.
Speaker B:It's all part of being a pirate.
Speaker B:A pirate, a pirate.
Speaker B:You can't be a pirate with all of your parts.
Speaker B:Being a pirate is often a game.
Speaker B:No.
Speaker B:Somebody loses an ear.
Speaker B:Pardon?
Speaker B:Sorry.
Speaker B:It rolls down your neck.
Speaker B:It lies on a deck.
Speaker B:When hopefully somebody says what's that?
Speaker B:Here, wear your glasses.
Speaker B:You don't pull the glasses.
Speaker B:Your mates have to shout.
Speaker B:So you.
Speaker B:Being a pirate is all fun and games Till somebody loses a gear.
Speaker B:It's all part of being a pirate.
Speaker B:A pirate, a pirate.
Speaker B:You can't be a pirate with all of your part.
Speaker B:It's all pirate.
Speaker B:Being a pirate.
Speaker B:A pirate.
Speaker B:Pirate copy.
Speaker B:A pirate with all of your parts.
Speaker B:Being a pirate is often in games.
Speaker B:Till somebody loses a hand.
Speaker B:Ooh, it spurts and it squirts and it's blooming well hurts only a pirate can stand.
Speaker C:Yes, my son.
Speaker B:Now, Pastor Bullock is a nice shiny hurt.
Speaker B:But then you can play in a band.
Speaker A:Thanks, man.
Speaker B:Being a pirate is all fighting games Till somebody loses a hand.
Speaker B:It's all part of being a pirate.
Speaker B:A pirate, a pirate.
Speaker B:Can't be a pirate with all of your parts.
Speaker B:It's all part of being a pirate.
Speaker B:A pirate, pirate.
Speaker B:You can be a pirate with all of your hearts.
Speaker B:Being a pirate till somebody lose their leg.
Speaker B:It hurts like a dickens.
Speaker B:Your pace never quickens.
Speaker B:Cause you're hopping a bank on a peg.
Speaker B:Now you never get married.
Speaker B:It's too long.
Speaker B:You've tarry and now you can't peel down and bail.
Speaker B:Being a pirate is all fun in games.
Speaker B:Till somebody loses a pig.
Speaker B:It's all part of being a pirate.
Speaker B:You can't be a pirate with all of your parts.
Speaker B:It's all part of being a pirate, a pirate.
Speaker B:You can be a pirate with all of your heart.
Speaker B:Go for it, go for it, go for it now yellow pirate is all funny games beat a pirate you didn't walk.
Speaker B:I lose it you're open it somebody spots it but I'm not gonna pick Comes along and he sews it back on or he stretches its side and he naught sea that's a little bit too tight though.
Speaker B:Being a pirate is all playing games Till somebody loses a boxy.
Speaker B:It's all part of being a pirate, a pirate.
Speaker B:You can't be a pirate with all of your parts.
Speaker B:It's all part of being a pirate, a pirate, a pirate.
Speaker B:You can be a pirate pirate with all of your hearts.
Speaker B:Being a pirate is all funny games Till somebody loses a head.
Speaker B:Holes with a thug that's better scarred in blood.
Speaker B:Put the hole back.
Speaker C:Yes.
Speaker B:Sticky and Red Lord.
Speaker C:10 grand.
Speaker B:You can't comb your hair cause your head's over there.
Speaker B:Besides that you're probably dead.
Speaker B:Being a pirate is all fun Till somebody loses a head.
Speaker B:It's all part of being a pirate, a pirate, a pirate.
Speaker B:It can be a pirate with all of your parts.
Speaker B:It's so far of being a pirate, a pirate, a pirate.
Speaker B:You gotta be a pirate with all of your your heart.
Speaker C:So I'm now sitting with Kate Collins, who is the chief exec of the Teenage Cancer Trust.
Speaker C:Welcome to the podcast.
Speaker A:Thank you.
Speaker C:And what an amazing event it's been so far.
Speaker A:Oh, it's been so much fun.
Speaker A:It's a shame it's on a podcast.
Speaker A:You can't see the size of the smiles on everybody's faces, but you can probably hear it in our voices.
Speaker A:Lovely event.
Speaker C:So good.
Speaker C:And I'm very confident if you pop over to our own social media site, and of course, there's probably going to be a lot of press around what's been going on.
Speaker C:You'll see it in all its glory.
Speaker C:It isn't just tea and cake and coffee and singing, but there's a serious component to all of this, isn't it?
Speaker C:And that is celebrating that this place has been 10 years old, of course, but also the amazing work that you represent with Teenage Cancer Trust.
Speaker C:Tell us a little bit more about that.
Speaker A:So Teenage Cancer Trust was set up fundamentally to make sure young people didn't face cancer alone.
Speaker A: e Cancer Trust ward opened in: Speaker A:And the founders of Teenage Cancer Trust, Adrian and Myrna Weitzner, husband and wife team, suddenly realized that actually, this wasn't the right place for young people to be treated and actually something should be done.
Speaker A:And the first Teenage Cancer Trust unit in London came into being and they thought, great, well, we've fixed that.
Speaker C:Yeah, done that, done that.
Speaker A:Tick off the to do list.
Speaker A:We've sorted.
Speaker A:Nice.
Speaker A:And here we are now with 28 units across the UK.
Speaker C:28 units, which, of course is phenomenal.
Speaker C:It means that the reach is as wide as you possibly can, I guess, for the young people to come through.
Speaker C:But it doesn't just happen because it's the fundraising, it's the money, it's the charity that you represent that feeds into all of that to make it happen.
Speaker A:Yeah, absolutely.
Speaker A:And every single thing that Teenage Cancer Trust does is funded by donations.
Speaker A:So we don't get any funding from the government or from statutory sources.
Speaker A:We don't have any contracts to deliver what we do.
Speaker A:So we work in partnership with the nhs.
Speaker A:We generate the funds to set up units just like this one, but also to fund specialist staff.
Speaker A:So Teenage Cancer Trust nurses, Teenage Cancer Trust youth workers who understand what it's like to be young and have cancer and help young people really be young people first and put their cancer second.
Speaker A:So We've got around 120 specialist staff across the UK working in the NHS, making sure young people and their families and their friends can navigate cancer in the best way for them.
Speaker C:Definitely.
Speaker C:And as I mentioned before, it's a great venue that's here.
Speaker C:10 years old now.
Speaker C:I mean, cancer isn't new because young people before had to kind of suffer in trying to find the right space, where to go.
Speaker C:And this provides everything that they need.
Speaker C:That escapism, the kitchen.
Speaker C:We've mentioned that before, but of course, literally a stone's throw away from the NHS bubble, which is providing amazing care.
Speaker A:Yeah, absolutely.
Speaker A:And I think I was talking before to Jo, whose daughter Ella, who sadly died as a result of her cancer.
Speaker A:But Ella actually was one of the young people who spoke at the appeal launch, right.
Speaker A:Back in the day, to raise the money to make this work happen.
Speaker A:And Jo was talking to me about how Ella, having her treatment before the.
Speaker A:The unit was in existence, would feel really lost, like people, oh, where is she?
Speaker A:Where is she?
Speaker A:In the hospital.
Speaker A:You know, young people can so easily fall through the cracks in a system that's not designed for them.
Speaker A:So, yeah, it's about bringing young people together and the.
Speaker A:The people who are the best experts in what it's like to be young and have cancer are not people like me with big shiny job titles, not actually nurses, not actually the clinicians.
Speaker A:It's young people themselves who actually are able to get together and kind of understand where someone else might be in their experience and which part of their experience they might be able to share with somebody else.
Speaker C:I think the good news is that more people survive cancer than they die of cancer.
Speaker C:But of course, that is the sad truth, that sometimes they're not so successful.
Speaker C:But it's great to hear that even though the outcome wasn't great for people that you've dealt with really early on, that they felt that they've contributed to the kind of foundations of this space.
Speaker A:Absolutely.
Speaker A:I mean, there's a.
Speaker A:There's a quote I love, which is, you know, somebody sits in the shade today because somebody planted a tree all those years ago.
Speaker A:And I think nothing is truer than the work of teenage cats.
Speaker A:Cancer Trust.
Speaker A:There are young people, there are families who went through cancer without our support, but were tireless in their fundraising to make sure that the young people and families that came after them were able to have better specialist support.
Speaker A:And we know so today in the uk, around seven young people will be diagnosed with cancer.
Speaker A:Every day, seven young people are diagnosed and we know that by about 20, 30, that will rise to around 10 a day.
Speaker A:So the need is not stopping.
Speaker A:Cancer is still occurring for young people.
Speaker A:And although around 80% of young people will survive cancer, it casts an enormously long shadow over the rest of your life, because you should have a long life ahead of you, of course, from.
Speaker A:From kind of 16, 17 onwards.
Speaker A:But actually, the impact of cancer can be hugely traumatic, mentally and physically.
Speaker A:So being able to get the right support.
Speaker C:Yeah.
Speaker A:When you are at such a tipping point age, I can remember being 16, 17, 18, you know, I really didn't know who I was, who I wanted to be.
Speaker A:You put cancer into that mix where you were out who you are, and actually it can be enormously traumatic.
Speaker A:So making sure there's specialist support is really the thing that puts fire in our belly, to make sure young people don't face that alone.
Speaker C:And I love it.
Speaker C:People are so enthusiastic about it, you know, even just being here today.
Speaker C:There's the multidisciplinary approach, not only from the charity, but also from the nhs, all come together Working together.
Speaker C:It is phenomenal.
Speaker C:And of course you've got the other factor.
Speaker C:It's not just a single patient here.
Speaker C:You've got the family to contend with as well and they need to come together and be supported by your charity.
Speaker A:Absolutely.
Speaker A:And the friends.
Speaker A:Because when, when you're a young person, I'm the mum of a 16 year old, a luckily very healthy 16 year old, but he is at the point where actually he kind of wants less to do with us because we're old and not particularly cool.
Speaker A:So really I'm with it.
Speaker A:I'm rolling with that.
Speaker A:I can cope.
Speaker A:And actually it's about starting to spend time with his friends.
Speaker A:And I can remember a visit I did to one of our other units and there was a young man going through treatment and his best mate was a doorman at a nightclub.
Speaker A:That was his job.
Speaker C:Okay.
Speaker A:And when before this young man had had cancer, what his mate used to do was kind.
Speaker A:He'd come off his shift as a doorman in a nightclub and would go around to his mate's house with a pizza.
Speaker A:Probably about half past two in the morning.
Speaker A:Nice sociable time.
Speaker C:Yeah.
Speaker C:That's when teenagers are the most.
Speaker A:Definitely not when I am.
Speaker C:Those days are gone.
Speaker A:Exactly.
Speaker B:Long, long gone.
Speaker A:But actually what the unit had set up for this young man was if that was still what happened.
Speaker A:So around three o'clock in the morning, this young man's mate would show up and he'd have the pizza and they would do the things that they normally did.
Speaker A:They were not letting cancer get in the way.
Speaker A:I think it absolutely.
Speaker A:About young people, it's about their family.
Speaker B:Yeah.
Speaker A:And we know one of the things that's most important to young people is making sure they know their family are supported.
Speaker B:Yes.
Speaker A:That's one of the things that's really key.
Speaker A:But also friends, you know, you go through this as a, as a young adult, you don't know how to have that conversation.
Speaker A:How do we talk about this?
Speaker A:How do we navigate this?
Speaker C:It's obviously on the telly.
Speaker C:You don't live it, do you?
Speaker C:And now they are.
Speaker A:It's stuff that happens to old people, of course, you know.
Speaker A:Yeah.
Speaker A:You know, and I can remember talking at an event with a young man called Joe Josh, and he talked about, he said, you know, I got diagnosed, I was an adult ward.
Speaker A:He said, you know, I was next to like ancient people, like people who were like 40.
Speaker A:And I was like, yeah, Josh, do you wanna, do you want to lift that ancient definition a bit?
Speaker A:But it's, it's A whole world away, you know, 20s, sometimes 60 years older, and actually being able to spend time with someone else who actually understands what life looks like when you're in your late teens, early 20s, as opposed to somebody who remembers it from quite a long time ago.
Speaker A:Yes, like I would.
Speaker A:It's so important, so good.
Speaker C:What's life like being a chief executive, a huge organization that is this so.
Speaker A:Well, it's full of life and heart, actually.
Speaker A:My job is all about people and conversations and joining the dots and helping not just young people be the best they can be, but help my team be the best they can be.
Speaker A:That said, it's pretty tough at the moment because everything we do is funded by donations and this is an astonishingly tough climate to raise money in because people, we've all got less money in our pockets, everything costs more and it's really, really challenging to make sure we can keep raising the money every day to make sure that, that young people have got that specialist care right from when they need it all the way through treatment and beyond.
Speaker A:So.
Speaker A:But I love it.
Speaker A:My job is full of the best of people, people like yourself, people like.
Speaker A:I mean, today's been full of, like, big smiles, lots of songs, lots of heart, and sometimes I think if you watch the news cycle too much, you can forget how brilliant human beings can be.
Speaker A:Being able to lead an organization like Teenage Cancer Trust is actually about remembering all the great bits about humanity, all the often off the wall, quirky, humorous, enthusiastic.
Speaker A:How are we having this conversation?
Speaker A:Why are we here?
Speaker A:That's.
Speaker A:I think that's.
Speaker A:That's what life's all about.
Speaker A:So I find it.
Speaker A:It definitely fills my days, but I'm very lucky to have a job I love.
Speaker C:Well, Kate, on behalf of the Port of Bristol Chanting Crew, thank you for everything you do.
Speaker C:We plan to continue to raise more money so you can carry on doing what you do so well with your team.
Speaker C:And we talk soon another time.
Speaker A:Thank you very much.
Speaker C:Thank you.
Speaker C:So that's it for this month's episode.
Speaker C:And like I said, if you are able to, then please do pop over to pobshanteancrew.co.uk click on the donate here.
Speaker C:And if you are able to give as little or as much money as you possibly can, we would massively welcome it and we will ensure that all of that goes towards the Teenage Cancer Trust.
Speaker C:So have a great summer holiday.
Speaker C:We will see you in September.
Speaker C:Please do pop over to our Facebook page to catch up with what we're up to during the summer period.
Speaker C:And if you plan to come and pop over and see us and support us, then please do.
Speaker C:That is the perfect space to find that.
Speaker C:Until then, fair winds and following in seas and take care Ship shape and.
Speaker B:Bristol fashion boys along the harbor side from even gorge to underfall even hold.
Speaker C:The line Obscure the barrels down below.
Speaker D:Bind them, tie and match them this.
Speaker B:Vessel she is certified Ship shape and crystal fashion so haul away me laddy boys Haul away, you're free Haul away me laddy boys and save a drink for me Haul away me laddy boys Haul away your free Haul away me lo boys and save a drink for me.
